Summer
Apart from the seizures restarting, and settling to maybe one per week, mostly good news. Saw Prof L, who upped the dose of oxcarbazepine, to hopefully reduce the frequency of seizures. Had another eeg, which seemed okay touch wood, but we're awaiting the formal report.
Jai's crawling faster, getting into things he shouldn't be, and climbing seats and ottomans. This has lead to a couple of bigger falls and some tears, so we're trying to "practice" protective reflexes (not really sure that this actually works, but our physiotherapist is keen). Jai's started speech therapy now too, and we're trying to teach him some key signs. He's trying to communicate and is definitely getting frustrated at times when he can't. I think this is good in ways; maybe this frustration means he is more likely to learn, with our help of course.
September/October/Novermber were difficult months, just getting through week by week. We seem to have scaled that mountain. Doing a lot of catching up now.. friends, wine, food and conversation.. having some good times, recharging, and looking forward to a good start to the year. Happy 2017!